An effortless and comprehensive approach to burden of illness reviews
Published: 04-12-2017
We have developed an ontology of over 5,000 PRO tools cited in abstracts included in the heoro.com database. In this blog, we list the 54 instruments from our ontology that have been used to assess the quality of life or well-being of caregivers of children.
The heoro.com database is updated daily from PubMed and our machine learning software indexes the new abstracts by mapping them to our series of ontologies for diseases, interventions and PRO instruments, as well as geographical locations, study types and study methodology. Our team of experts also moderate key papers to add new items to the ontologies and enhance the quality of the indexing.
Our PRO instrument ontology is primarily indexed according to the disease area, but we also have sections where tools that are designed for use in a specific population are indexed. One of these areas relates to caregivers, and within that area we have indexed the 54 tools for caregivers of children. These are as follows:
| About-you and your-family |
| Adolescent Pain Behavior Questionnaire (APBQ) |
| Adult Responses to Children's Symptoms Questionnaire (ARCS) |
| Adult-Adolescent Parenting Inventory |
| Assessment of Caregiver Experience with Neuromuscular Disease (ACEND) |
| Breastfeeding Attrition Prediction Tool |
| Breastfeeding Self-efficacy Scale |
| Brother-Sister Questionnaire |
| Batteria Valutazione Neuropsicologica (BVN 5-11) |
| Caregiver Report Form (C-TRF) |
| Caregiver-Teacher Report Form (C-TRF) |
| Child Management Practices Questionnaire |
| Child Vulnerability Scale |
| Comprehensive General Parenting Questionnaire (CGPQ) |
| Conners' Parent and Teacher Rating Scales |
| Diagnostic Rating Scale (DRS) |
| Eyberg Child Behaviour Inventory |
| Family Affective Attitude Rating Scale (FAARS) |
| Family Functioning Measure (FFM) |
| Family Functioning Questionnaire |
| Health Status Classification System-PreSchool (HSCS-PS) |
| Home Care Resources Inventory (HCRI) |
| Höök-Cederblad Child Behavior Interview |
| ICIS, Impact of Childhood Illness Scale |
| Index Relative Questionnaire |
| Kilifi Developmental Checklist |
| Life Situation Scale for Parents (LSS-P) |
| Maternal Reactions questionnaire |
| Mother-Infant Communication Screening (MICS) |
| Mother's Assessment of the Behavior of her Infant (MABI) |
| Nursing Child Assessment Satellite Training Teaching Scale (NCAT) |
| Ouderlijke Opvattingen over Opvoeding (OOO) |
| Parent Attitude Scale (PAS) |
| Parent Concern Questionnaire |
| Parent Experience of Childhood Illness |
| Parental Bonding Instrument |
| Parental Perception Questionnaire (PPQ) |
| Parental Perspectives questionnaire (PP) |
| Parental Schoolwork Support Measure-Youth (PSSM-Y) |
| Parental-Caregiver Perceptions Questionnaire (P-CPQ) |
| Parent-based report of verbal abilities (CDI-III) |
| Parent-based reports of non-verbal cognitive abilities (PARCA3) |
| Parenting Sense of Competence |
| Parenting stress index, Parental Stress Index (PSI/SF) |
| Parents' Evaluation of Developmental Status (PEDS) |
| Parent's Perceptions of Primary Care Measure (P3C) |
| Parents Sense of Competence Scale |
| Patients' Recognition Form (PRF) |
| Pediatric Inventory for Parents (PIP) |
| Preschoolers Diet-Lifestyle Index (PDL-Index) |
| QoL of caregivers of children with influenza-like illness (Care-ILI-QoL) |
| Quality of Life in a Child's Chronic Disease Questionnaire (QLCCDQ) |
| Schedule for Evaluation of Quality of Life |
| Teacher Observation of Classroom Adaptation-Revised (TOCA-R) |
You can find the abstracts in which these tools have been cited by searching the Dashboard for Disease: All diseases or no specific disease; Study type: PRO study; Instrument: pick the PRO tool of interest from the menu; then click "Search". The dashboard is completely free to use, and you can download the abstracts identified by your search as a .txt file, which you can them import into citation manager software such as EndNote.