An effortless and comprehensive approach to burden of illness reviews

Blog - PRO tools added in January-March 2020

Published: 27-04-2020

We have developed our ontology of PRO instruments based on those tools that are cited in the abstracts we index in our database. The ontology has over 5,500 instruments that have been indexed to the abstracts that cite them, and we add new instruments as we come across them from our daily search of PubMed.

In January to March 2020 we added another 38 instruments to the ontology. These are listed in the table below.  You can find the abstracts that cite them by searching for their name in the Instrument menu on the Dashboard as follows:

 1. Go to the Dashboard.

2. Select "All diseases or no specific disease" from the Diseases menu.

3. Select "PRO studies" from the Study type menu.

4. Then select the PRO instrument you are interested in from the Instruments menu.

5. Click on "Search" and all relevant papers will appear. 

The dashboard is completely free to use, and you can download the abstracts identified by your search as a .txt file, which you can them import into citation manager software such as EndNote.


Instrument Disease area
Functional Assessment of Cancer Therapy - Bladder (FACT-BL) Cancer
Quality of Life in Oral Cancer (QOL-OC) Cancer
Cardiff Cardiac Ablation PRO tool (C-CAP) Cardiovascular
Heart Failure Somatic Perception Scale Cardiovascular
Relatives' Stress scale Caregivers
Diabetes Stress Questionnaire-Short Form (DSQ-SF)  Diabetes
HepaDisk Gastrointestinal
Monitor IBD At Home questionnaire (MIAH, MIAH-CD, MIAH-UC) Gastrointestinal
Heartland Forgiveness Scale General
Ikigai-9 General
Interpersonal Reactivity Index-C General
Readiness for Hospital Discharge Scale (RHDS) General
Kids ITP Tool  Haematology
Cochlear Implant Quality of Life (CIQOL) Hearing
Cambridge Neuropsychological Automated Test Battery (CANTAB) Mental health
Charleston Psychiatric Outpatient Satisfaction Scale (CPOSS) Mental health
Decision Tool Unipolar Depression (DTUD) Mental health
Dutch Measure for Quantification of Treatment Resistance in Depression (DM-TRD) Mental health
Maudsley Staging Method (MSM)  Mental health
MyCognition Quotient (MyCQ) Mental health
Negative Symptom Assessment (NSA-4) Mental health
Reed Anosognosia Scale Mental health
Social Appearance Anxiety Scale (SAAS)  Mental health
Instability Severity Index Score  Musculoskeletal
Vail hip score (Vail-10) Musculoskeletal
Wales Lower Limb Trauma Recovery Scale (WaLLTR) Musculoskeletal
Cervical-Brachial Symptom Questionnaire Neurology
Pain intensity, Interference with Enjoyment of life and General instrument (PEG) Pain
Ardouin Scale of Behavior in Parkinson's Disease (ASBPD)  Parkinson's disease
Disseminating Quality-of-Life Research Questionnaire Research
Cough and Sputum Assessment Questionnaire (CASA-Q) Respiratory
Medication Adherence Estimation and Differentiation Scale (MEDS) Treatment
Multitheoretical List of Therapeutic Interventions - 30 items (MULTI-30) Treatment
Body Image in Pelvic Organ Prolapse Questionnaire Urogenital
Hallym Post Micturition Dribble Questionnaire (HPMDQ) Urogenital
Majeed Pelvic Score (MPS) Urogenital
Dutch Crosslinking for Keratoconus score (DUCK) Vision
Pediatric Eye Questionnaires (PedEyeQ) Vision


Alison Martin

Head of Reviews